Food intolerances in Fabry disease

Many Fabry sufferers are sensitive to certain foods. They often experience gastrointestinal complaints or pain crises - but the triggers vary from person to person.

Several patients report that coffee can increase pain, especially in the feet. After giving it up, the symptoms often disappeared completely. Dairy products, pork or mutton and tobacco can also trigger reactions in some people, while others tolerate them well.

These experiences show that consciously observing and adapting the diet can help to reduce symptoms and improve quality of life.

Fabrysuisse invites those affected to share their own experiences in order to jointly gain insights into possible triggers and compatible foods.

Experiences personnelles pouvant aider les autres malades de Fabry

Sur le plan alimentaire, j'ai fait depuis l'âge de 18 ans, de nombreuses expériences qui m'ont beaucoup aidé a mieux supporter les effets négatifs de la maladie de Fabry et a améliorer la qualité de ma vie de façon substantielle.

For now, I would like to tell you about my latest discovery. At the end of the year, I was on vacation on an island in the Indian Ocean. La-bas, everything is wonderful except that they don't know how to make good coffee. So I've been waiting to drink it. My pain in my feet then disappeared a little at a time. After returning to Switzerland after 2 weeks, I decided not to drink any more coffee, *just to see*. My worries have totally disappeared, I feel much better and I'm calmer.

My personal conclusion is that the nerfs of Fabry's patients are very serious and that it's better not to excite them any more with coffee! I don't know if a doctor will confirm this, but I tell you that it's a pity to eat: after all, the café is not very good."