Reports on conferences and presentations related to FABRY DISEASE and rare diseases are published here. (NEW at the top, older at the bottom)
20th patient event on November 8, 2025
Fabry disease in children, Prof. Dr. Albina Nowak > Presentation
Medical hypnosis today, Dr. Julia Schürch > Lecture
Report: in progress
FIN, Fabry International Network – 20th anniversary meeting
2025: Fabry disease expert meeting April 25–27, 2025, in Lisbon, Portugal, with workshops. Discussion on fundraising and new topics of interest: “Fabry disease and menopause in men and women, and aging in both sexes.”
1st German-speaking Three-Country Meeting 2024
Fabry Three-Country Meeting for all Fabry patients from Germany, Austria, and Switzerland from June 14 to 16, 2024, at the Hotel Forsthaus in Fürth near Nuremberg.
Speakers on medical topics: Dr. Ali Tunç Tuncel: Neuropediatrics and metabolic medicine for children and adolescents. Prof. Müller: Rare kidney diseases. Dr. Elisabeth Blüthner: Hepatology and gastroenterology, stomach and intestines. NN: Cardiology NN: Neurology.
Morbus Fabry Selbsthilfegruppe e.V., Germany > https://fabry-shg.org/
19th Patient Event on November 9, 2024
What is Fabry disease; Prof. Dr. Albina Nowak, Zurich
Music as pain therapy; Prof. Dr. Günther Bernatzky, Salzburg
Examples Slides from the presentation, heavily abridged.
Nutritional recommendations
Performance optimization in Fabry disease
Kristin Landolt, nutritionist/therapist BSc
Presentation given at the Fabrysuisse annual conference in Zurich, November 4, 2023
18th patient event on November 4, 2023