Welcome - we're glad you're here.
Whether you are living with Fabry disease yourself, are a family member, are professionally involved with the topic or simply want to find out more: We focus on your questions and concerns.
We offer you reliable information, understandable insights, networking opportunities - and information on current projects such as the pain study.
Fabry Suisse is committed to the exchange between patients and specialists. Our aim is to make medical knowledge accessible and easy to understand - for everyone living with Fabry disease.
Those who live without a diagnosis for a long time often encounter a lack of understanding. Talking to other people affected can help them overcome isolation and cope better with everyday life with the disease.
Fabry Suisse provides information, networking and support. The organization is the result of a joint initiative by patients and committed doctors.