Occurrenzas 2025

Occurrenza annuala fabrysuisse

📅 Sonda, 8 da november 2025
📍 Sorell Hotel Zürichberg, Turitg
🕘 Cumenzament 9:15 / 9:45

Programma

• Prof. Dr. Albina Nowak: Malsogna da Fabry tar uffants

• Dr. med. Julia Schürch: Hypnosa medicala ozendi – funcziun e pussaivladads tar la malsogna da Fabry

Suenter:

• Marenda

• Radunanza da l’uniun

• Program d’uffants cun surveglianza en il Zoo Turitg

ProRaris – Di da las raras malsognas

📅 Sonda, 1. mars 2025
📍 Ospital chantunal Lucerna (LUKS)
Tema: Representantas e representants da pazients
🔗 Website visitar

Emnas da savida Selpers davart raras malsognas

📅 15 da favrer – 14 da mars 2025
📍 Online sin selpers.com

Contribuziuns dad expertas ed experts, quizzes interactivs e rapports d’experientscha – gratuit e chapibel.
🔗 A las emnas da savida
🔗 A los programs

FIN Fabry Expert Meeting 2025 (internaziunal)

📅 25–26 d’avrigl 2025
📍 Lisboa, Portugal
📖 Suraim da l’inscunter: englais

Persunas interessadas pon s’annunziar sut info@fabrysuisse.ch.
Ina sustegn finanziala è pussaivla.